Parkinson Cafe March 3, 2016, I had the privilege of working with a group of people gathered to give each other support and guidance as they discussed their personal trials and success. Some spoke of not having control over their body, no longer being able to multi-task, and coping with the discomfort they [...]
Have you ever heard of Prader-Willi Syndrome (PWS). I recently met someone who is living with this disorder. Its characteristics include an insatiable appetite, developmentally issues, and behavioral problems. I had quickly looked online to find information, which seemed to focus on the genetics of the birth defect that causes suffers of PWS to eat excessively and face life threatening obesity. Surprisingly, the husband of a friend, who is working on getting his counseling license, happens to work with a local Prader-Willi Syndrome Association, and actually did some writing about the syndrome. I believe he may have written or contributed to the booklet I stumbled upon that gives an overview of the disease and tips for managing behaviors.
